Wednesday, December 28, 2022

After the change in medications for my last treatment I had three good days leading up to Christmas. On Boxing Day I came off those meds and I fell fast. Kathryn warned me that might happen.

I was very low energy on the 26th, although we managed a short walk and some time at the beach. It isn’t often that we get an onshore breeze and after our short walk on the “Mighty Machine Trail” we parked ourselves at a picnic table and enjoyed listening to the waves lapping on shore. I certainly appreciated all the benches along the stretch of the trail that we walked where I could stop and rest.

Yesterday wasn’t a good day at all and I spent most of it in bed; for whatever reason laying in bed felt better than even sitting in the chair. I started to ache later in the day but I don’t know if it was because I had been in bed for so long, if it was the weight of my new weighted blanket being too heavy (but I love it) or if it was a reaction to the injections I started taking again on Christmas Day.

Getting out to the lab for bloodwork this morning was a challenge but after getting up and then going back to bed we finally made it to the hospital. I don’t know how to read the reports so I don’t know if I’m doing better or worse than I was last week. I guess the doctor will call if anything has to change.

I’ve had a couple of naps today; I’m feeling better than I was yesterday but I’m hopeful I’ll have even better days ahead.

Thursday, December 22, 2022

I knew this morning it was just a matter of time. My scalp was very tender. As the day progressed I was losing more and more hair – not in clumps as was suggested would happen, but handfuls were coming out whenever I ran my fingers through my hair.

We had planned that Pat would give me a buzz cut when the time came but his clippers really weren’t up for the job. My hair is very thick so he started to trim it down with scissors. It soon became apparent that this wasn’t going to work either.

With a treatment tomorrow I wasn’t sure I would be up for a salon visit after and I really didn’t want to go out looking half shorn – not that I’ve looked in a mirror since we started the process. And with Christmas approaching it might be days before I could get out.

Pat made an emergency call to the hair salon and we are going to meet her this evening and she will, hopefully, finish the job.

Sunday, December 18, 2022

I have bad days, days that are a bit better and even a few good days thrown into the mix. I never know how my day is going to be but today has been pretty good – so far.

I had the last of my injections today – they will start again in a week. Only minor issues with them and if that is as bad as they are I can manage them. So far Pat has always been here to give them – I keep saying I could do it if I needed to and fortunately up to now I haven’t had to test the theory.

I did a bit of hand stitching this morning and got to work on a jigsaw puzzle that Elizabeth sent. It has been a long time since I’ve done a “real” puzzle but it is my favourite game on my iPad. I started a new book today as well.

We decided to go out for a walk today. It was too windy to test out the track but we thought we’d go around the block. When we were ready to head out Pat suggested we go to the sea walk. We made it out as far as the truck before deciding it was too cold for that so we took a slow, and very cold, walk around the block. When we came in and I was settled with a hot chocolate I checked the weather – it was -2 but felt like -8. It was good that we got out but I look forward to warmer days.

Friday, December 16, 2022

I was falling into a depression the last couple of days and I needed to give myself a talking to. My plan for today was to get myself into some sort of routine that didn’t involve so many naps. But when I got up at six I had to take a nausea pill so went back to bed until eight.

I can’t say I’ve done a lot today but I’ve been more active. I answered some email and paid some bills this morning. I intended to clear my sewing table in order to set up a puzzle but I didn’t quite get to that – tomorrow. 

I managed a little hand stitching today and watched Alex’s curling game. Unless I feel like I really need it I’m going to settle for a relaxing afternoon rather than a nap. Even in the best of times an afternoon nap left me feeling lousy when I woke up so I’ll see if this is better. I may be in bed earlier than normal tonight but we’ll see.

My thought today is that if I feel horrible I’ll stay in bed and if I feel okay I’ll be up and about.