Sunday, December 18, 2022

I have bad days, days that are a bit better and even a few good days thrown into the mix. I never know how my day is going to be but today has been pretty good – so far.

I had the last of my injections today – they will start again in a week. Only minor issues with them and if that is as bad as they are I can manage them. So far Pat has always been here to give them – I keep saying I could do it if I needed to and fortunately up to now I haven’t had to test the theory.

I did a bit of hand stitching this morning and got to work on a jigsaw puzzle that Elizabeth sent. It has been a long time since I’ve done a “real” puzzle but it is my favourite game on my iPad. I started a new book today as well.

We decided to go out for a walk today. It was too windy to test out the track but we thought we’d go around the block. When we were ready to head out Pat suggested we go to the sea walk. We made it out as far as the truck before deciding it was too cold for that so we took a slow, and very cold, walk around the block. When we came in and I was settled with a hot chocolate I checked the weather – it was -2 but felt like -8. It was good that we got out but I look forward to warmer days.

Friday, December 16, 2022

I was falling into a depression the last couple of days and I needed to give myself a talking to. My plan for today was to get myself into some sort of routine that didn’t involve so many naps. But when I got up at six I had to take a nausea pill so went back to bed until eight.

I can’t say I’ve done a lot today but I’ve been more active. I answered some email and paid some bills this morning. I intended to clear my sewing table in order to set up a puzzle but I didn’t quite get to that – tomorrow. 

I managed a little hand stitching today and watched Alex’s curling game. Unless I feel like I really need it I’m going to settle for a relaxing afternoon rather than a nap. Even in the best of times an afternoon nap left me feeling lousy when I woke up so I’ll see if this is better. I may be in bed earlier than normal tonight but we’ll see.

My thought today is that if I feel horrible I’ll stay in bed and if I feel okay I’ll be up and about.

Tuesday, December 13, 2022

I won’t lie, I had a tough 24 hours yesterday. It was that horrible headache that just wouldn’t go away. The medical people keep pushing Tylenol but I’ve known for a long time that Tylenol doesn’t work for me. I was nauseous this morning but I think that was more from the headache than the treatments. As soon as I was able this morning, I called the Oncology ward and got approval to take the Aleve. Within hours of taking the Aleve I was feeling better – headache still there but under control.

I’m experiencing one of the common side effects of the infusion injections I’m taking; nothing I can’t handle. I have a spasm of pain through my stomach every now and again. They only last the length of a breath; a deep breath in and out controls the pain.

The Oncology doctor from Vancouver called this afternoon just to check in. The results of both the bone and CT scan are in and they show no cause for concern. 

After being indoors and in bed for so long I thought I’d like some fresh air. For a good long time late this morning I sat out on the back deck, wrapped up in sweaters and a quilt and enjoyed the fresh air. There wasn’t a lot of sunshine but it wasn’t wet.

We may head out to mini-golf this evening; the Fire Department have a walk-through light display. I’m not going to be able to see the concert I look forward to each year so this will be our Christmas “thing”.

Monday, January 12,2022

I’m checking in with a brief update. The days after my first treatment were better than that first afternoon although I had to deal with a bad headache and I wasn’t allowed to take my usual headache meds. The headache has subsided but not actually gone away.

My sleep is a bit off. I’ve been waking up around three or four, getting up for a couple of hours and then back to bed for a couple more hours of sleep. I don’t like laying there awake so feel I may as well be up doing something. Not that much of anything is being done mind you.

I had my first injection yesterday and felt badly after but today I sat still for a half hour after and that was better. It is awkward injecting myself but Pat supervises and makes sure I’m doing it right.

I was able to confirm today that the January appointment with the radiologist can be done by telephone. That is a relief as the ferries are being cancelled almost daily due to staffing issues. There will be times when I have to go down but all of the open appointments with the radiologist were treatment weeks.

So far I’m okay. I’d like to go to sleep at night and feel great in the morning but that will be awhile coming. Thanks for all the good wishes.

Happy Birthday Dylan